What Challenges are Associated with Spinal Muscular Atrophy?

Spinal muscular atrophy is a condition that generally impacts infants and very young children. Some forms, however, can develop later in life, even during adulthood. Generally speaking, the cases of spinal muscular atrophy that begin during adulthood are not as severe as though that begin during childhood, and those who suffer from these cases are still able to go about relatively normal lives, having jobs, starting families, and enjoying leisure activities. As a family caregiver, however, you should understand that just because the effects are not as severe does not mean that there are not potential challenges that can occur as a result of this condition.

Home Care Services Webster NY - What Challenges are Associated with Spinal Muscular Atrophy?

Home Care Services Webster NY – What Challenges are Associated with Spinal Muscular Atrophy?

Unfortunately, the complications associated with SMA are often particularly detrimental for elderly adults. Seniors often struggle with other complications and issues that further complicate the effects of SMA, making it even more important that you are aware of them and able to take meaningful steps to overcome them.

Some of the challenges that are associated with spinal muscular atrophy include:

  • Aspiration of food and fluids into the lungs when eating or drinking
  • Increased risk of pneumonia caused by aspiration of food and fluids
  • Contracts of tendons and muscles leading to involuntary movements, pain, and other issues
  • Heart failure
  • Scoliosis
  • Breathing difficulty

It is particularly important to note the potential challenges and complications that can come if your elderly family member must undergo a surgery or other medical procedure that involves the need for your parent to go under anesthesia. Many elderly adults suffer from medical conditions and issues that require such treatments, and when this happens the anesthesia can cause further problems. These include difficulty breathing as well as potentially catastrophic effects associated with muscle-relaxing medications that may be used in conjunction with anesthesia.

If your parent suffers from SMA and must go under anesthesia, it is extremely important to review this condition with all members of the medical team, including the anesthesiologist, so that they can utilize different drugs that will not put them at the same risk.

If you have been considering ways that you would be able to enhance your parent’s quality of life and support an ongoing lifestyle of independence and fulfillment, now may be the ideal time for you to consider starting home care services for them. A home care services provider can be there with your aging parent on a fully customized schedule to ensure that they get everything that they need to remain happy, healthy, comfortable, and safe throughout their later years.

The highly personalized nature of these services enables the care provider to address your parent’s individual needs, challenges, and limitations in the way that is right for them by respecting their preferences, goals, and opinions. This means that they can handle their daily personal care tasks, support good lifestyle choices, keep them active and engaged, and even offer reminders to help them stay compliant with their medications and treatments so that they can get the most benefit from them.

Sources:  https://globalgenes.org/raredaily/august-is-spinal-muscular-atrophy-awareness-month/
https://www.mda.org/sites/default/files/publications/Facts_SMA_P-181.pdf

If you or an aging loved one are considering Home Care Services in Webster NY, contact the caring staff at Caring Hearts of Rochester today! Serving Rochester, Pittsford, Greece, Webster, Canandaigua, Fairport, Perinton, Penfield, Brighton, Henrietta and ansurrounding communities. Call 585-245-0134.

About Kevin Watkins

Caring Hearts of Rochester was founded by John Hunt and Kevin Watkins. Kevin and John met when they were in the same Boy Scout Troop in their youth. They chose different career paths before forming Caring Hearts.

Kevin and his wife, Candy, lived in Naples, Florida for 10 years, where three of their four children were born. He was recruited to the insurance industry by a colleague who felt his personality would benefit people with needs. The insurance industry became a big part of their lives. He evaluated peoples’ risks, working with property and casualty, and life products, and later began to underwrite Long Term Care insurance as people were beginning to plan for their futures. He started two agencies, then bought a third. In his last three years before selling his third agency, he was ranked in the top 10%, top 5% & then top 1% nationally out of the more than 12,500 Allstate agencies in the U.S. at the time. Kevin’s success can be accredited to his kind nature and his genuine desire to help individuals and families with their needs. He feels very at home meeting with people and discussing their needs, a trait that has been very helpful in his continued success with Caring Hearts of Rochester. Kevin returned to Rochester in 2006 to introduce their young children to snow and to be closer to his extended family.

After having returned to Rochester from their careers in other states, John and Kevin reconnected. Alzheimer’s had afflicted both of their families, and they had both experienced and witnessed the challenges associated with the role of being a caregiver. Kevin’s and John’s collective experiences complemented their desire to work with families and individuals in need. They founded Caring Hearts of Rochester and have since been able work in a capacity that has become a passion for them. They are both Certified Senior Advisors (CSA), a designation earned through education, study and experience in the Elderly and Geriatric Care Profession. Their number one concern is providing their senior clients with ethical and effective services and products. Caring Hearts of Rochester is associated with numerous local affiliations for the elderly in the Upstate NY area including Lifespan, Eldersource, and the Greater Rochester Area Partnership for the Elderly.

As the co-founders and hands-on managers of Caring Hearts of Rochester, we thank you for this opportunity to tell you about our passion. We are responsible for the services we offer, for the people we hire, for the training they receive, for the quality and reliability of the services our team delivers to you and your loved ones. Give us a call so that we may learn more about you and your needs at (585) 861-CARE(2273)